Anastasia Medical Group
 

Center for Advanced Vein Care - North Florida

Klippel-Trenaunay Syndrome

What is Klippel-Trenaunay Syndrome?

The Klippel-Trenaunay Syndrome (KT) is a rare, congenital disorder in which patients usually have one hypertrophied leg, a port wine stain, and large varicose veins on the lateral aspect of the leg.

Duplex ultrasound usually reveals huge varicose veins filled with blood under high pressure. Most have a normal deep system that provides this high pressure.

What are the Symptoms?

Patients often have pain and swelling, and the clinical condition deteriorates to swollen leg and leg ulcers. This is the result of venous pump failure. The presence of arterio-venous malformations is also occasionally found.

Treating Klippel-Trenaunay Patients

Because the Klippel-Trenaunay Syndrome is a very diffuse disease, surgical correction is virtually impossible. We have treated many of these cases successfully. Our comprehensive treatment addresses the points of origin for reflux deep in the leg. The results have been quite encouraging, with almost all our patients enjoying reduced pain, swelling and other symptoms. We focus on the following aspects:

1. Proper evaluation of the Hemodynamics

Duplex ultrasound “mapping” documents the precise points of origin for the reflux. These are usually huge and permit large volumes of blood to flow downward into the varicose veins. This map becomes our blueprint, helping us follow the patient’s progress.

2. Below-the-knee Isometric Compression Wrapping


Isometric compression is applied between the foot and knee only to significantly help the failing venous pump. Isometric compression wrapping is powerfully anti-inflammatory, and it eliminates dermatitis and swelling. Unfortunately, proper application of isometric compression bandages requires a great deal of experience. Initially, the bandages have to be changed every couple of days. Teaching patients how to do this takes time and practice. But the effort is well worth it. Patients usually remark that their legs feel lighter and stronger as soon as they begin walking.

3. Long-Term Management

We have found that treating the roots of the problem effectively relieves the symptoms. We use ultrasound imaging to find and treat, then later to confirm that our objectives have been reached. We also use ultrasound after one year to confirm that proper healing did occur. In the meantime, reduced swelling and discomfort are good clinical indicators.


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